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The ME/CFS Recovery Toolbox

Whether you are suffering from ME/CFS or long covid, this toolbox is for you. Recovery can seem like really hard work sometimes - there is so much to think about. This guide will help you find clarity on your recovery journey. 

Contents

Introduction

The ME/CFS Recovery Toolbox is designed to help you navigate your way through the recovery journey. It will cover everything from pacing to nutrition, with information, ideas, recommendations and sites you can visit for more info.

If there is anything you would like to find out more about, please drop me a line at hello@sorrelpindar.co.uk
Welcome to the ME/CFS Recovery Toolbox
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The Recovery Jigsaw

The Recovery Jigsaw
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Pacing
Rest and Relaxation
Meditation

Nutrition & Supplements

Each individual is different and there are no one-size-fits-all recommendations for nutrition and supplements. However there are some basic guidelines which may help to get you started.

You may decide you need to consult a nutritionist and if so it is a good idea to find someone who has a track record of working with ME/CFS patients.
Nutrition
Cooking
Supplements
Herbal support

Exercise & activity

The most important thing to remember in relation to exercise and activity is that you need to pace yourself.

That said, it is important to ensure that you are careful to avoid severe deconditioning. In this section we look at what you can do that will help you maintain your condition without making yourself feel worse.
Walking

Sleep

Sleep is vital to recovery. We all need about eight hours a day, but if you are recovering from any kind of illness or injury you need more sleep.

In ME/CFS sleep is particularly important as it is the time when the brain does most of its drainage - draining away toxins out into the body. This occurs during the deep sleep phase of the cycle, which is often disturbed in ME/CFS.

Many patients complain of finding it difficult to fall asleep. Others that they wake in the small hours and can't get back to sleep. Some find that they wake up over and over again during the night or are disturbed by long periods of wakefulness or by vivid or frightening dreams.

Whatever problems you may have with sleep, it is likely that you wake in the morning feeling unrefreshed.

There are a number of approaches to improving sleep including sleep hygiene, anxiety management, herbal remedies and medication. 

In this section we look at a variety of approaches to the promotion of good sleep.
Sleep hygiene
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Light Exposure
Anxiety Management
Minerals & Herbal Remedies
Medication & Melatonin

Managing all this stuff

So how do you manage all these different parts of your recovery?

I've heard people say that recovering from M.E. is a full-time job. And it can seem that way particularly if you have other responsibilities such as family or work.

However it is possible to make it easier for yourself with a little help.
Timetabling
Dealing with guilt and the Inner Critic
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Coaching to help you connect with your innate healing power and manage your recovery
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Resources

There are various resources which patients have found useful. I will be adding to the list over the coming months.
Curable Health Pain Programme
Perrin Points: Facebook group for patients receiving or contemplating Perrin Technique

Books

There are a number of books which you may find helpful. I will be adding more books to this list over the coming months.
Raymond Perrin. The Perrin Technique: How to beat chronic fatigue syndrome/ME EPUB
Alex Howard - Decode Your Fatigue
Raymond Perrin. The Perrin Technique: How to diagnose and treat CFS/ME and fibromyalgia via the lymphatic drainage of the brain
Kristin Neff. Self Compassion: stop beating yourself up and leave insecurity behind
Bessel Van der Kolk. The Body Keeps the Score
Peter Levine. Waking the Tiger: Healing Trauma: The Innate Capacity to Transform Overwhelming Experiences
Kelly Wilson. Things May Go Terribly, Horribly Wrong: A Guide to Life Liberated from Anxiety